FREE MEMBERSHIP
for patients or parents of minor patients
Are you affected by a lymphatic malformation?
Welcome to the Lymphangioma Association Website
Our Association has been active since 2014 in representing adult and child patients suffering from lymphatic malformations.
Our association’s purpose is to :
The association is in contact with French and other European organisations and patients’ support groups such as CLOVES - AVML – VASCAPA – EURORDIS, also rare diseases groups (Fava-Multi-Fimarad-Tetecou…) VASCern, the European network for rare vascular multi-systemic illnesses and ISSVA, the internationale society for the study of Vascular Anomalies.
Our association’s purpose is to :
- Unite patients
- Communicate reliable information about these rare conditions
- Direct patients towards specialised multidisciplinary medical care
- Obtain recognition for the role of complementary therapies
- Share and communicate patients’ varied medico-social experiences
- Gather statistics for the upkeep of a data-base
- Inform patients of their rights and help to enforce these
- Boost fundamental medical research into lymphatic function and the causes of these malformations
The association is in contact with French and other European organisations and patients’ support groups such as CLOVES - AVML – VASCAPA – EURORDIS, also rare diseases groups (Fava-Multi-Fimarad-Tetecou…) VASCern, the European network for rare vascular multi-systemic illnesses and ISSVA, the internationale society for the study of Vascular Anomalies.
Our events and actions
Theatre "Les femmes à l'Ouvrage"
01 December 2016
En Région Pays-de-la-Loire, les bénévoles organisent tous les ans une soirée théâtre. La Compagnie "Les voisines" ont donné une représentation s'intitulant "Les femmes à l'ouvrage" à la salle culturelle de...
Take part in our Survey !
If you are directly concerned by a lymphatic malformation, whether patient of a minor patient, please fill in our questionnaire and help us direct others towards good, efficient medical care.
>> CLICK HERE TO START
Localising patients
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