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FREE MEMBERSHIP
for patients or parents of minor patients

Are you affected by a lymphatic malformation?

Welcome to the Lymphangioma Association Website

Our Association has been active since 2014 in representing adult and child patients suffering from lymphatic malformations.
Our association’s purpose is to :

  • Unite patients
  • Communicate reliable information about these rare conditions
  • Direct patients towards specialised multidisciplinary medical care
  • Obtain recognition for the role of complementary therapies
  • Share and communicate patients’ varied medico-social experiences
  • Gather statistics for the upkeep of a data-base
  • Inform patients of their rights and help to enforce these
  • Boost fundamental medical research into lymphatic function and the causes of these malformations

The association is in contact with French and other European organisations and patients’ support groups such as CLOVES - AVML VASCAPA EURORDIS, also rare diseases groups (Fava-Multi-Fimarad-Tetecou…) VASCern, the European network for rare vascular multi-systemic illnesses and ISSVA, the internationale society for the study of Vascular Anomalies.

Our events and actions

Christmas market 2017 in Presles en Brie

25 November 2017
Christmas market 2017 in Presles en Brie

Meet the association Lymphangiomes at the Christmas market of Presles-en-Brie from 10:00 to 17:00 in the church square.

Take part in our Survey !


If you are directly concerned by a lymphatic malformation, whether patient of a minor patient, please fill in our questionnaire and help us direct others towards good, efficient medical care.

>> CLICK HERE TO START

Localising patients

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To register on the map, the patient or parents can fill in the application form without any previous obligation concerning membership of the association.

Our partners

About the association

The Lymphangioma Association is the first association in Europe bringing together patients affected by Lymphatic Malformation. Founded in February 2014 and declared to the Seine and Marne prefecture in the Île de France region.

Newsletter subscription

Contact-us

AMLA
Agir Malformation Lymphatique Aliiance
12 rue Abel Leblanc
77220 PRESLES-EN-BRIE
France
contact@asso-amla.org

The medical information on this site does not replace in any case the medical consultation which alone makes it possible to establish a diagnosis
and to put in place a protocol of care adapted to each individual case.
©2018 Lymphangioma Association

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